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Harlequin type ichthyosis
5384 cr points
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M / ふぃりぴん!
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Posted 6/2/08
i watched the video and it was so sad! i felt sad for the baby. the baby doesn't want that to happen too, yet the people were saying all sorts of things. God bless the baby!
4286 cr points
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M / ♥♥♥♥♥♥♥
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Posted 6/2/08
LULZ.
EUTHANASIA.
I wouldn't want to live looking like that. I seriously doubt anyone else does either. Plus that shit looks like it'd hurt like a bitch.
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26 / M
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Posted 6/2/08
Poor kid T_T I almost cried watching the video (I couldn't watch it all) It was bleeding because of the cracks. Poor thing T_T I hope it can live.
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25 / M / Somewhere.... per...
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Posted 6/3/08
I pity them....
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F
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Posted 7/1/08
I'm too scared to watch the video T_T.

I pity them too..
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22 / M / CA
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Posted 7/1/08
Even if you did live through that all you would have is suffering..
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25 / F / guess where
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Posted 7/2/08
i wonder what its causes are....how the hell could such a thing happen? it's the worst disease i've ever known so far...

i wonder what a mother would feel if she ever had a child like that....
i wonder if she would feel disgusted at her own child...i wonder if she would take care of the baby despite its appearance...

it's so sad to think about babies being born like that...plus, if they were treated with disgust, that would make their life even worse....but but it's not like it's their fault they were born with such a horrible disease...

Posted 7/2/08
wow, how much chance is there that they will survive it?
Posted 7/2/08

chocofluffywhip wrote:


ngox wrote:


chocofluffywhip wrote:
I can't answer the last question, but you might want to ask that to one of the (few) adults who have grown up with the disease. I think they might value their life.


I'm sorry to say that there is no one who has lived past a year and a half with that disorder/disease. With continuous infection and disease, no harlequin person would be able to survive for long outside. Even if a person lived in a protective bubble, the body is incredibly weak and begins to break down and rupture extensively. It's a life of pain and suffering that ends fairly quickly.


That's not true. While it is rare, there are several documaented cases. One mentions sisters ages 8 and 1 1/2. 2 others talk about fully grown adult males that manage daily activites with uses of lotion and excessive scrubbing for theit excess skin.


Eh, I'd like to see where you got your information, because being quite informed about medicinal stuff, I've never heard of any cases where the fetus would get older than the age of 2. Are you sure that it was ichthyosis congenita? And not some other form of ichthyosis? Or maybe it was Epidermolysis bullosa, which would be quite a different story.

PS: sorry for this late quoting, but I was away for a month..soo..>.>

Floetry~
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25 / F / HAHAH=P
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Posted 7/2/08
poor baby!!!
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24 / M / Why do you wanna...
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Posted 7/9/08
im 2 scared to watch it
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23 / F / Long, long ago an...
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Posted 12/12/08

wrote:


chocofluffywhip wrote:


ngox wrote:


chocofluffywhip wrote:
I can't answer the last question, but you might want to ask that to one of the (few) adults who have grown up with the disease. I think they might value their life.


I'm sorry to say that there is no one who has lived past a year and a half with that disorder/disease. With continuous infection and disease, no harlequin person would be able to survive for long outside. Even if a person lived in a protective bubble, the body is incredibly weak and begins to break down and rupture extensively. It's a life of pain and suffering that ends fairly quickly.


That's not true. While it is rare, there are several documaented cases. One mentions sisters ages 8 and 1 1/2. 2 others talk about fully grown adult males that manage daily activites with uses of lotion and excessive scrubbing for theit excess skin.


Eh, I'd like to see where you got your information, because being quite informed about medicinal stuff, I've never heard of any cases where the fetus would get older than the age of 2. Are you sure that it was ichthyosis congenita? And not some other form of ichthyosis? Or maybe it was Epidermolysis bullosa, which would be quite a different story.

PS: sorry for this late quoting, but I was away for a month..soo..>.>

Floetry~


After the initial shock of seeing the child, I wanted to cry. No one deserves that. Nobody. It's so cruel.

and this is an article that talks about the man who lived, even after being born with this disease as a child; I must say, I really admire this man for all that he accomplished despite this impediment.

Article link: http://www.10news.com/health/3919722/detail.html
Posted 7/16/09
OP deleted. Thread no longer makes sense

~locked
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