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Anyone suffer any rare disease
Posted 12/14/12
I am suffering from Kikuchi disease, the doctors here dont even know much about it, they say its only in 3 percent of the worlds population. Been ten month still no well.

anyone else with a rare disease doesnt have to be the same.
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17 / M / Canada
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Posted 12/14/12
Thankfully I don't but I do hope that you get better bro.
KFD is defiantly recoverable so for now just take your time with the docs and get things worked out.
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22 / F
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Posted 12/14/12
I've got Asperger's Syndrome.
I constantly think about the very same stuff every single day.
It's like my brain is always on autopilot or something like that.
And my blood type is AB-Negative, which only about 0.5 % of the world's population got the same blood type as myself, I just wrote this because of sheer boredom, which probably is quite unnecessary to write down.
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23 / M / Cloud 9.
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Posted 12/14/12
Hyper IGE.

I don't even know what it is, but apparently my immune system sucks so my body feels like a 50 year old.

Hope you get better.
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29 / M / Bellingham WA, USA
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Posted 12/14/12
I have angiolipoma's in my arms and chest. Which are rare benign tumors. Not really suffering though, aside from the fear of cancer, and the minor surgery I had this week to remove/biopsy one in my right arm.

God my whole family was trying to prepare me for the eventuality of having to start chemotherapy, while I was like "yeah...let's just see what that biopsy comes back as first..." I'm way more of a "let's just assume things are fine" than a "let's prepare for the worst" sort of guy
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Posted 12/14/12
It's not severe, but I am hypoglycemic.
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52 / F
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Posted 12/14/12
Rheumatoid arthritis, it's where your white blood cells attack your joints and organs. Had it most of my life, 32 surgeries in and I'm still doing better than they ever said I would. Take all the negatives from the doctors with a grain of salt. They're not always right about everything.
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Morroωιɴd
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Posted 12/14/12 , edited 12/14/12
I have this: http://ghr.nlm.nih.gov/condition/common-variable-immune-deficiency

Suffering though? eh. Good and bad days. Things are about outlook imo. A positive outlook is key to anything.

Edit: I R GUD SPELLUR
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Posted 12/14/12
I had Steven-Johnson syndrome last summer, died, and came back to life!
Kidding. But no really, that was the worst 2 months of my life, never wanna experience that again.
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M / 七十七 / ミシガン
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Posted 12/14/12 , edited 12/14/12
I don't think I have any diseases, yet...

This thread though reminded me of a funny scene in The Simpsons where Mr. Burns was diagnosed as the sickest man alive:

Doctor: Mr. Burns, I'm afraid you are the sickest man in the United States. You have everything.
Mr. Burns: You mean I have pneumonia?
Doctor: Yes.
Mr. Burns: Juvenile diabetes?
Doctor: Yes.
Mr. Burns: Hysterical pregnancy?!
Doctor: Uh, a little bit, yes. You also have thousands of diseases that have just been discovered... in you!
Mr. Burns: You're sure you haven't just made thousands of mistakes?
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26 / M / Canada
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Posted 12/14/12
I don't think its rare or anything but I have Intentional Tremors, but I wouldn't say I'm suffering from it as I've lived with it all my life
Posted 12/15/12
Lol woah i never knew id get such a response, I Hope everyone here gets better because I know how you feel when a lot of people dont know how we feel with having pains all d time. Well I have fevers nearly every night where im feeling super hot like a bad fever lol and dizziness and shit and stomach problems and eating problems lol. My disease is n no way life threatning but it really is bad especially every day of feeling it. Thanks everyone I will hopefuly with gods help get better real soon cant wait for it. When I do im gonna invite everyone and have a big massive dinner worth hundreds of pounds and thank god lol.
Posted 12/15/12
I don't suffer from anything except stupidity, but all jokes aside - best of luck to you all.
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Posted 12/15/12
I have Anaphylaxis. It's really lame actually, but still, only 2% of the world has it.
It sounds super serious, but really, it's just that if I eat a cashew ima swell up and explode or some shit idk.
Basically just a really bad allergic reaction.
Ugh.
Why couldn't I have something cool.
Posted 12/15/12

srslybro wrote:

I have Anaphylaxis. It's really lame actually, but still, only 2% of the world has it.
It sounds super serious, but really, it's just that if I eat a cashew ima swell up and explode or some shit idk.
Basically just a really bad allergic reaction.
Ugh.
Why couldn't I have something cool.


dnt say that u dnt want continous suffering trust me
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