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Anyone suffer any rare disease
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25 / M / California
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Posted 12/17/12 , edited 12/17/12

PhyongHwa wrote:

I've got that too, but worse (I still suck at multiplication and above). I think it has gotten better with age though.....or maybe its because I've just learned little tricks (keeping a notebook/planner) to deal with it (If I lost it I would be totally screwed). I can't even remember my mom's phone number or address. I use landmarks because I can't remember street names.


Yeah, division is getting harder for me, as is multiplication. I only trust myself with simple addition and subtraction and, even then, I catch myself making more mistakes than I used to. I try to get other people to do math for me or I just use a calculator if I have to do it myself. I don't trust my mental calculation anymore. It's at the point where I also can't visualize someone's face unless I have seen them A LOT.

If you showed me a picture of a stranger and allowed me to study it for a minute, then you took it away for another minute and told me to visualize, I can't do it.
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21 / M
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Posted 12/17/12
Not that I know of....Or maybe that's how rare it is.
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F / Earth
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Posted 12/18/12

Morbidhanson wrote:


PhyongHwa wrote:

I've got that too, but worse (I still suck at multiplication and above). I think it has gotten better with age though.....or maybe its because I've just learned little tricks (keeping a notebook/planner) to deal with it (If I lost it I would be totally screwed). I can't even remember my mom's phone number or address. I use landmarks because I can't remember street names.


Yeah, division is getting harder for me, as is multiplication. I only trust myself with simple addition and subtraction and, even then, I catch myself making more mistakes than I used to. I try to get other people to do math for me or I just use a calculator if I have to do it myself. I don't trust my mental calculation anymore. It's at the point where I also can't visualize someone's face unless I have seen them A LOT.

If you showed me a picture of a stranger and allowed me to study it for a minute, then you took it away for another minute and told me to visualize, I can't do it.


If I see a person I know, but not well, I'll remember their face but not their name. I usually fake remembering them and even if I don't remember them at all I'll fake it too. I haven't got caught yet. Sometimes I'll remember them later, or when the person is gone I ask the person I am with (If I'm not alone), "Who the hell was that?" Oddly enough, sometimes under pressure I can memorize names. Once I volunteered to work at a kids' camp and forgot to bring the name tag stickers I bought, so under pressure I memorized a group of kid's names that I had never met. Another time I had a job at an arts & crafts store and they decided to put me on the register, it was an old fashioned one, so I had to figure out the change in my head...there was no calculator! I guess I'm okay with money now, but I'm not confident enough to not carry around a calculator to double check anyway.
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F / Earth
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Posted 12/18/12
I have a micro pituitary adenoma/micro prolactinoma (tumor on the pituitary gland, non-cancerous). It wreaks havoc on my body's chemicals and hormones. I had it for god knows how long, but found out about it 18 years ago. I got it treated, and it went away/stopped messing me up, until it came back 15 years later......and brought diabetes with it. Later, I also acquired carpal tunnel syndrome.
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M / Cali
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Posted 12/18/12
Aplastic anemia. Had it since birth, my body cannot produce enough red blood cells so I would have to get blood transfusions/bone marrow transplants.
Although there are many types of anemia, such as iron and sickle cell, I just happen to have a rare condition alpha hemoglobin type. babies born with this type of anemia don't usually live past a certain age, as it greatly affects their immune system. I got lucky.
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23 / F / USA
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Posted 12/18/12
I got paralyzed from the waste down, broke my back...............lol. We are awesome!!!
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Posted 12/18/12 , edited 12/18/12
I have a rare disease, that the doctors still hasnt found everything about it, its in the area mitchondria myopathy\metabolic myopathy.

Lactic acid in my body comes very fast, and uses 10 to 18 hours to go away (normal people uses 30minutes), so in other words it never goes away, and feels like i have been running marathon all my life, so i have pain in my muscles all the time.

First year i was in bed, second year walking, now lifting weights, maybe the only person in the world who can stand so much lactic acid.
been 9 years now, never let a disease put you down, never give up. No Pain, No Gain
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20 / F
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Posted 12/18/12
I have an unidentified disease, does that count?

Going on a year now, and even though I've been through a bunch of intrusive tests, no one has any idea what is wrong with me.
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27 / M / Canada
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Posted 12/18/12

jacoalda wrote:


DyTonic wrote:

I don't think its rare or anything but I have Intentional Tremors, but I wouldn't say I'm suffering from it as I've lived with it all my life


Yeah, I have tremors and I don't consider myself suffering from it too because its just shaking. I find it helps with gaming (pressing buttons really fast) and warming one self up during winter. Also, its probably useful IN other places (girls - with the vibrating hand/fingers and all) LOL :P

EDIT: Yeah, obviously I'm a virgin...


LOL I haven't heard that one in a long time! Only thing I guess I can say that counts as suffering is the constant remark "soo...you do it intentionally then?" its a pain of having to repeatedly explain it to others
Posted 12/18/12

-Vega- wrote:

It's not a disorder, but I have a extremely rare personality type. I am an INFJ according to the Myers-Briggs test. Only one percent of the worlds population have my personality. Among the male population the percentage is even lower. I have never come across anybody like me and you others will probably never will have as well.


It is rare indeed, but I wouldn't quote any of those horrendous statistics.
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34 / M / The Void.
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Posted 12/18/12

evenstar95 wrote:


-Vega- wrote:

It's not a disorder, but I have a extremely rare personality type. I am an INFJ according to the Myers-Briggs test. Only one percent of the worlds population have my personality. Among the male population the percentage is even lower. I have never come across anybody like me and you others will probably never will have as well.


It is rare indeed, but I wouldn't quote any of those horrendous statistics.


How rare is it though?

Posted 12/18/12 , edited 12/18/12

-Vega- wrote:

How rare is it though?


Pfft like 99% of the population.

Nah I wouldn't say more than 2% but that's just a speculation.
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M / 20.0167° N, 155.6...
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Posted 12/18/12
I got CRS sometimes.......
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18 / F / United Kingdom
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Posted 12/18/12

Colourofmusic wrote:

I have an unidentified disease, does that count?

Going on a year now, and even though I've been through a bunch of intrusive tests, no one has any idea what is wrong with me.


Same... I've got 3 hospital appointments soon so they can have a look but they haven't found anything in my blood tests... Its been going on for like 8 months now... I get symptoms that are like chronic fatigue syndrome but I have floater problems in my eyes too even though my eyes were perfect when I had an eye test... My stomach is all spazzed up too -.- It sucks when you don't know what is wrong since it makes it hard to deal with it...
pakola 
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19 / M / Purgatory
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Posted 12/18/12

-Vega- wrote:

It's not a disorder, but I have a extremely rare personality type. I am an INFJ according to the Myers-Briggs test. Only one percent of the worlds population have my personality. Among the male population the percentage is even lower. I have never come across anybody like me and you others will probably never will have as well.


I am an ESTP...doing more research on it...I don't know if it is good or bad. Thanks for the test though, it was fun while it lasted.
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