First  Prev  1  2  3  4  5  6  7  8  9  10  11  Next  Last
Anyone suffer any rare disease
1132 cr points
Send Message: Send PM GB Post
23 / F
Offline
Posted 1/7/13

dragonroo wrote:


masterofjungle wrote:

I've got Asperger's Syndrome.
I constantly think about the very same stuff every single day.
It's like my brain is always on autopilot or something like that.
And my blood type is AB-Negative, which only about 0.5 % of the world's population got the same blood type as myself, I just wrote this because of sheer boredom, which probably is quite unnecessary to write down. :P


My brother was just diagnosed with Asperger's this year. He is high-functioning, so people just think that he is faking it. Do you get the same reaction from people who do not understand?
Back to the main topic, I do not know if this is rare, but I have a genetic disorder. My right ear did not form right, so I cannot hear low sounds out of my right ear. I cannot be near crowds or loud noises because my ear does not register noises right.


Sorry for replying after such a long time since you replied, was on a long vacation trip.
There's always been people who I've always ignored and many of them seriously thought I was 'too shy' to talk to them, but I honestly just don't have any interest in them, because I'd rather talk to people with the same interests as me.
50217 cr points
Send Message: Send PM GB Post
19 / M / Tiphares
Online
Posted 1/7/13
I suffer from a rare disease known as Lazinitis.
1998 cr points
Send Message: Send PM GB Post
21 / F / Minnesota
Offline
Posted 1/9/13
Mine is not really a disease but it's an allergic reaction. It is known as Cold Urticaria


Cold urticaria (ur-tih-KAR-e-uh) is an allergy to cold temperatures. With cold urticaria, exposure to cold temperatures causes redness, itching, swelling and hives on the skin that has been in contact with the cold. As much as possible, people with cold urticaria should avoid exposure to cold air and cold water. For example, swimming in cold water is the most common cause of a severe, whole-body reaction — leading to fainting, shock and even death.


Didn't know how serious it was until I almost fainted in school, after walking to school in the morning.The doctors told my parents it would go within months or a year, but sadly it has been almost 16 years since I had this.
13152 cr points
Send Message: Send PM GB Post
25 / M / Bethlehem, Pennsy...
Offline
Posted 1/9/13
I was born with a cataract in my left eye, left part of my rib cage sticks outward quite noticeably. kinda feels like one of my ribs make a "s" shape. My left eye is slightly up more then my right. Oh and I am literately unable to use my left hand for just about anything. I can barely hold a spoon. Freakin weird its only my left part of my body that this all happened... Odd?
10010 cr points
Send Message: Send PM GB Post
23 / M / Australia
Offline
Posted 1/9/13
Man, Some of you guys have some pretty serious stuff. I hope you all recover and it would've undoubtedly made you more resilient and strong-willed people over time and will continue to do so :)

In my mid to late teens I had a very severe case of eczema and other skin conditions I can't even remember the name of as there was too many to list.

Pretty much most ingredients in foods or exposure to drastic body temperature changes (e.g hot shower on cold winter morning) would send my whole body into a frenzy. at one point I was just a giant red husk from head to toe who could barely eat anything without going into an itching frenzy till I was bleeding. No sort of topical creams or moisturisers would help at all and had to even be very precise about what chemicals and ingredients went into the build up of those, even water which would dry the skin.

I usually wore fully covered clothes just to hide it so I could hold down a job and not result to health benefits (I couldn't bare not working and stimulating myself in a busy environment) Luckily the city I used to live was quite cold a lot so this was possible. After going to several specialists, some saying I would live with this for the rest of my life (depressing as hell). I came across a brilliant dermatologist who said it would most likely pass as I get into my early 20's. After some very strong gels/creams that would literally thin facial and hand skin down to the bone that smelt like petrol. Things improved. As the skin became stronger my body managed to be able to handle more types of food and drink (yay!)

I've now moved to a much warmer climate and found a few natural cleansers that seem to keep my skin strong and clear of infection/weakening. And can finally just shower in the morning without going through incredibly irritating reactions which would cause massive levels of stress. I'm still far from perfect. But it's lead me onto a much healthier way of living just to maintain the stability and I'm thankful for that.

I know skin issues is a more common occurrence for people and it's nothing drastic like what I've seen here but it's cool to hear and share stories!

Now if only I can deal with the constant RSI in my left hand!
1130 cr points
Send Message: Send PM GB Post
25 / World Wide Web
Offline
Posted 1/9/13 , edited 1/9/13
It's not really a rare disease but a rare condition: I have SM, Selective Mutism
I can't talk to people.
(Wiki) People with selective mutism are fully capable of speech and understanding language but fail to speak in certain situations, though speech is expected of them. The behaviour may be perceived as shyness or rudeness by others.
I can only talk in specific situations and/or to certain people. When I'm in public every word I try to speak, no matter how hard I try to force it out, just die in my throat.

I also have ASD, Autism Spectrum Disorder (aka, Aspergers syndrome) and since my SM is linked to my that, and I'm an adult, my SM is close to impossible to treat.

768 cr points
Send Message: Send PM GB Post
34 / M
Offline
Posted 1/9/13 , edited 1/9/13
Not sure of rare or not....3 years being sick many, many and very many tests done and let go from auto industry job at time. So far they are working with my hypothyroidism <been sleeping 16-18 hours a day roughly, not by choice> Had G.I. bleeds that come and go and they are still working on that but food goes straight through me so nutrition levels aren't what they should be. Have dealt with anxiety since my teens which makes me anti social and weary of going outside. Most of this stuff going on so long is starting to lead to depression -shrug- good news is there are plenty of shows to watch and my pet bunnies to keep me company <have had them for 7-8 years now> ^.^
227 cr points
Send Message: Send PM GB Post
16 / F
Offline
Posted 1/9/13
I do not think this is classed as a disease but I have Anosmia - Meaning I cant smell since birth
My doctor says it is very rare but I dont know?
61028 cr points
Send Message: Send PM GB Post
23 / M / Missouri
Offline
Posted 1/9/13

ichigofes12 wrote:

I am suffering from Kikuchi disease, the doctors here dont even know much about it, they say its only in 3 percent of the worlds population. Been ten month still no well.

anyone else with a rare disease doesnt have to be the same.


Disease is conveniently Japanese. Good for CR forums.
32044 cr points
Send Message: Send PM GB Post
Offline
Posted 1/9/13
I actually have PDD-NOS (Pervavise Developmental Disorder-None Other Specified), which is a type of autism. While not selectively mute, I can barely speak at times in public, and usually very quietly and/or with a speech impediment. Starting a conversation with somebody is incredibly tough to do. I also have involuntary hand movements, horrible reflexes (I was in physical therapy as a child).

(Possibly as a result,) I am also a HSP (highly sensitive person), who is easily hurt emotionally and get discouraged from so many things because of what people say both online and offline.
49229 cr points
Send Message: Send PM GB Post
29 / M / Riding sound waves
Online
Posted 1/9/13
not any rare diseases but I have a ganglion cyst on my left foot, IBS, generalized anxiety disorder, GERD and I stutter (which isn't a disease but a speech impediment). I take many meds every day to control my symptoms.
13137 cr points
Send Message: Send PM GB Post
(´◔౪◔)✂╰⋃╯
Offline
Posted 1/24/13

masterofjungle wrote:

I've got Asperger's Syndrome.
I constantly think about the very same stuff every single day.
It's like my brain is always on autopilot or something like that.
And my blood type is AB-Negative, which only about 0.5 % of the world's population got the same blood type as myself, I just wrote this because of sheer boredom, which probably is quite unnecessary to write down. :P
Nice, makes you sound mysterious. It keeps the girls coming because they think they can re live a sad k drama.

51752 cr points
Send Message: Send PM GB Post
East Coast
Offline
Posted 1/24/13
You just have to have a positive attitude. Half the doctors tell me I look great and the other half say I ought to be dead (like my general practitioner who has seen everything that has gone on.) My endocrinologist tells me one day I just won't wake up. Since I had to quit my job it just makes more time to watch anime, play games, and take art classes.

Don't worry, be happy
3053 cr points
Send Message: Send PM GB Post
24 / M / U.S.A
Offline
Posted 1/24/13
No diseases that i'm aware of currently, but I do have pretty bad anxiety from time to time. D=
Posted 1/24/13
they cant do shit about it lol been so many times now lol plus all dey do is touch my genitals every time i go
First  Prev  1  2  3  4  5  6  7  8  9  10  11  Next  Last
You must be logged in to post.