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Any of you have any disorders/mental illnesses/disabilities?
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29 / F / England
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Posted 10/4/14 , edited 10/4/14
I have neurofibromatosis type 1
due to this I have
psudarthrosis
scoliosis
arthritis
severe fatigue

This means I get painful jolts most days, they happen in my legs and arms.
my joints seize and lock this is very painful.
some days I cant move much, I use a cane to walk most days
some days I am fine with no pain and do not need the cane.
my ankles and knees are the worst... and most painful...
sometimes when my ankle locks and seizes I cant walk at all.

I get tired easily and when out I have to stop and rest...

that said if I really want to do something I will push all I can for the time I am doing it like when I am doing events management (which can last 3 days ) then I will be bedridden for a while >_< but to me its worth it

its finding a balance between having a life, and looking after yourself. sometimes the pain and suffering is worth it because you had such a good time lol

I suffer from depression though I havent suffered severely for a while now

despite this being a very emotional time at the moment

I was born with nf (neurofibromatosis) it was a spontaneous mutation this means no one in my family has it, it just happened, but the condition is hereditar for those who have it. so any children we have , have a 50% chance of having it.

now this disorder varies in severity... you can have it and not know you have it, you can have it mildly so severe.... you can pass away from complications of nf and you can be severely disfigured... some children pass away due to complications with nf you only really get as a child
so my husband and I are trying a type of IVF where they only implant you with a healthy embryo free of the disorder... our chances are 35-40% of it being successful... we have done one cycle and out 10 embryos only one did not have the disorder... so everything is riding on the this one embryo. It has been frozen and we have to wait 3 months for my body to return to normal as my hormones will be all over the place after 2 months of daily injections.

The embryo has to survive being thawed and has to what we call stick and thrive onces its transferred into me...

We are both very emotional and sometimes over react to stuff at the moment as its a tense and scary wait... so I apologise if I over react to anything anyone says on the forum >_<

I have always dreamed of having a baby and being pregnant... I didnt think I would get the chance as I would never just risk it because the risks are too high... I would never want my child to go through what I have or worse, most of my childhood was spend having operations and in hospital, I was a happy child and my parents we amazing, we build lego castles, played on consoles until 3 am sometimes to take my mind off the pain, they made sure I had good times, but its not something I would choose for my child. but this IVF PGD may give us this chance... we will adopt if it dsnt work and were always planning on adopting our second child anyway.

sorry guys I maybe shouldnt have gone into so much detail......im an honest person and open about these things, mainly because thats how people learn about the struggles of others and maybe it could help someone somehow...




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23 / M / Somewhere in rura...
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Posted 10/4/14 , edited 10/4/14
Mental confirmed:
Major Depressive (depression) disorder
Anxiety disorder
insomnia
Mental about to be investigated:
Asperger's or Avoidant Personality Disorder
PTSD
unknown memory loss issue
Physical:
Peripheral nerve damage to all extremities (mostly numb, sometimes it feels like my limbs are on fire)
chronic migraines
blindness (they stopped testing when my vision hit 20/200)
30% hearing loss in both ears
IBS
seborrhea of the scalp
fatty liver
high blood pressure
high cholesterol
Random bouts of nausea associated with stress.
Oh, forgot asthma, how could I forget you, old friend. You make me look like I'm dying on the UT campus as I slog my way to the chemistry building every day.
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Posted 10/4/14
major depression(possibly bipolar disorder not diagnosed)
anxiety
agoraphobia
ibs
OCD
vitamin deficiency
thyroid problem


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F / The Far Shore
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Posted 10/4/14 , edited 10/4/14
major depressive disorder, hypersomnia, anxiety, and anemia
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22 / F
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Posted 10/4/14 , edited 10/4/14

Steffiekun wrote:

I have these really violent urges to hurt random person on the street that suddenly appear in my brain for no reason since i was a kid. Most of the time after those thought came in, i just tell me "WTF Dude, why would you do something like that, you will get in jail for that" and never acted on it. Funny thing is that i really hate over violence and gory anime which is why i avoid Attack on Titan and many animes that are mentioned to be good but got a lot of violent death and body counts.


Is it not really urges, but thoughts? Since I used to get that all the time when I was little, like, worst case-scenario of random objects sitting around? Like a knife falling off the counter and hitting a pet? Though I used to get the "violent urge" part too... :o
And I know this may sound silly, but a large bulk of it stopped when I went off gluten. (My mood drastically mellowed out as well, I used to react about 100 times as fast.) Gluten also left lasting damage on my stomach years later, so maybe get that checked out just in case? n.n

Anyway, I'm on Depression+Anxiety meds for my Depression and Social Anxiety. The meds help a lot, but Depression is definitely one of those things where you're not really "cured" by taking meds, so when I run out my mom and sis notice pretty quick... n.n;
I think I've recently gotten worse though since I've been feeling like I use to and the meds don't seem to be working, so it'll be figured out soon. In the meantime, back to being a Poyo potato... n.n;
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24 / M / Houston
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Posted 10/4/14
Well depression for sure due to problems in the family issues with relationships and lack of social interaction so no friends really
insomnia
Anxiety Attacks from time to time in the middle of the night
I have a very bad temper, but most people don't because after years i have mastered the art of zen
I am a very anti social person
Inferiority Complex
I also have this weird self esteem thing where i hate myself but i also think im better that everybody else lol


i am currently going to a therapist for my depression (not taking any medication though i dont like the feeling )
and im going to the gym to help me with my self esteem and confidence (i think its going well ive lost about 40 pounds since december and im starting to feel better about myself but i still got along way to go)

But a wise man once said

There is no progress without struggle and sacrifice.
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29 / F / England
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Posted 10/5/14

KP_Wrath wrote:

Mental confirmed:
Major Depressive (depression) disorder
Anxiety disorder
insomnia
Mental about to be investigated:
Asperger's or Avoidant Personality Disorder
PTSD
unknown memory loss issue
Physical:
Peripheral nerve damage to all extremities (mostly numb, sometimes it feels like my limbs are on fire)
chronic migraines
blindness (they stopped testing when my vision hit 20/200)
30% hearing loss in both ears
IBS
seborrhea of the scalp
fatty liver
high blood pressure
high cholesterol
Random bouts of nausea associated with stress.
Oh, forgot asthma, how could I forget you, old friend. You make me look like I'm dying on the UT campus as I slog my way to the chemistry building every day.


Sounds like you have a difficult time

Everyone on this thread seems to gave it hard too

Hope you are having a good day today
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20 / F / Australia
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Posted 10/5/14
Clinical Depression (or Major Depression, as it's also called) that begun about 6 years ago
Relative sleeping and eating issues stemming from other conditions (it's just a vicious cycle that got worse and worse, it all fuels each other)
GAD
Social Phobia
IBS (just chucking this in there while other people are as well)
Anemia

My brother (6 years older than myself) has also been on and off various medications, including anti-psychotics among other things.

I've always refused medication because I've seen how it's affected my brother in the past and it's just....put me off a lot.
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33 / M / new jersey
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Posted 10/5/14
You all seem to be pretty educated regarding a lot of various problems and I'm sure many of you might be on medications. The best advice I can give you guys is that if anybody says you should be on any type of medication you should always ask:

Do I need to be on this medication?

Most doctors will listen to people and categorize them in their head and then give them therapy based on what the guidelines say. Honestly, in my opinion most people want to be on some kind of medication for whatever reason and most doctors will happily oblige just to move on with their day (if you fit within the guidelines). A lot of medications are over prescribed, and if any of you go to a psychiatrist you will very likely be put on something because to a hammer everything is a nail.

I'm guilty of categorizing and putting people on medications but once in a blue moon somebody will ask "do I need to be on this?" and it gives me a mental brake and actually makes me think instead of just going along with the guidelines and I know many other doctors that do the same. So always as the question, if not then you will just be put into a category and treated as such.
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F / Virginia
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Posted 10/5/14
Depression.
Yang08 
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26 / F / United States
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Posted 10/5/14
Malformed Kidneys
Maybe malformed ovaries (they never really figured that one out)
Anemia
Thyroid (was diagnosed as bipolar at one point so they put me on lithium....as you can see lithium does funny stuff to the thyroid)
Anxiety
Aspergers
ADHD
Arthritis is also starting to hit.

Aspergers (High functioning autism but my therapist/doc/and psychiatrist just call it Aspergers) and ADHD was diagnosed just a few months ago after extensive testing combined with testing from when I was a child.

Only medications I am on are for my hormones and for attention. The rest I use supplements for sleep (melatonin) and for anxiety (NAC) though if I don't sleep at all I have a sleeping pill as backup.

I have bad reactions to medicines...super sensitive to every thing plus after a lot of bad doctors misdiagnosing me and putting me on medication after medication after medication....I try to avoid the stuff and focus on therapy instead. Many things can be solved with a good therapist and a good violent sport to participate in (boxing ).
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29 / F / England
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Posted 10/5/14
Not having a good day

Joints have locked and seized in a lot of pain

Painkillers not helping

Hotwater bottles everywhere lol

And I have a chest infection and am on antibiotics yay

Couch day for me today

It's ok I'm going to watch lots of anime and play ff7
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30 / M / Central KY.
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Posted 10/5/14

Aura-chan wrote:
Couch day for me today

It's ok I'm going to watch lots of anime and play ff7


You are AWESOME and that which You plan on doing is AWESOME!!!!

Psssst...I Hope You feel better soon.
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22 / F / Australia
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Posted 10/5/14 , edited 10/5/14
I have Rheumatoid Arthritis, I started noticing symptoms early last year and was diagnosed at the end of last year. I walk with a cane, mostly don't leave the house. I need help showering and moving from sitting to standing. Can't stand for too long, my partner pushes me around in a wheelchair if we're going to be out for a while and otherwise I stop to rest every 5 - 10 minutes. Was mostly bedridden from pain when it started, bit better now that I'm on medication, though I still have some really really bad pain days. Currently doing weekly physio in a hot pool.

Besides RA I have Depression and Anxiety. The depression is genetic and I've had it my whole life. The Anxiety was caused by home life circumstances. Both are a lot better than they were a few years ago, though I still have bad relapses every now and then.

It's nice to see threads like this, even if there aren't a whole lot of people responding.

Edit: I almost forgot, I have asthma. Was severe when I was a kid, but these days it's more of an occasional annoyance.
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29 / F / England
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Posted 10/5/14 , edited 10/5/14



x-Cellar_Door-x wrote:


Aura-chan wrote:
Couch day for me today

It's ok I'm going to watch lots of anime and play ff7


You are AWESOME and that which You plan on doing is AWESOME!!!!

Psssst...I Hope You feel better soon.


haha thank you

you are awesome too :P

currently only on disk one of my lost count of how many re play throughs of ff7 :P

hubby is not a ff fan >_< trying to get him to play it, not even the power of my puppy eyes has seemed to convince him

currently watching Hiiro no kakera

Any recommendations on anime to check out would be awesome



Emmerah wrote:

I have Rheumatoid Arthritis, I started noticing symptoms early last year and was diagnosed at the end of last year. I walk with a cane, mostly don't leave the house. I need help showering and moving from sitting to standing. Can't stand for too long, my partner pushes me around in a wheelchair if we're going to be out for a while and otherwise I stop to rest every 5 - 10 minutes. Was mostly bedridden from pain when it started, bit better now that I'm on medication, though I still have some really really bad pain days. Currently doing weekly physio in a hot pool.

Besides RA I have Depression and Anxiety. The depression is genetic and I've had it my whole life. The Anxiety was caused by home life circumstances. Both are a lot better than they were a few years ago, though I still have bad relapses every now and then.

It's nice to see threads like this, even if there aren't a whole lot of people responding.

Edit: I almost forgot, I have asthma. Was severe when I was a kid, but these days it's more of an occasional annoyance.



sorry to hear that, its horrible isnt it ...

I love hydrotherapy! the pool is sooooo warm and it helps ease my joints... I can move better in the water :)

what DMARD's are you taking?

have they mentioned any surgeries that might help?

They have discussed the possibility of a tens machine in the future for me.

They have to watch what meds they put me on because of my neurofibromatosis symtoms

I end up having long hot baths to help with the pain... I have the laptop on a table in the bathroom so I can watch anime, films ect... because it gets annoying and boring lol but smooths the pain (doesnt take it away but can make it bearable) especially helpful on major flare up days

with my condition I can develop life threatening stuff, cancer, severe bone and muscle issues worse than now, I can still develop deformities though its less likely now I am reaching 30 with no signs the trigger and symptoms of that.

But if I spent my time worrying what could happen I would never live, so I dont think about it. I deal with each difficulty as I comes otherwise I would be consumed and overwhelmed

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